Monday, April 25, 2011

Simply 10 Good Things

inspired by Soule Mama

the faces she draws after requesting a family drawn by me

when they play together


feeding my kids

when she falls asleep by herself

his smile, his eyes and yes, his beard

his imagination and the delight he gets out of his own creations

family work

this warm and comfy spot

family walks

check this out:

suggested reading

looking for 100 MS blogs
Montel Williams' Climbing Higher
MS and Your Feelings: Handeling The Ups and Downs of Multiple Sclerosis by Allison Shadday
The Multiple Sclerosis Diet Book by Roy L. Swank
Multiple Sclerosis A Self-Help Guide to Its Management by Judy Graham

There will be more as we read more.  I just wanted to share this with you.  You who loves Jim and can learn so much about what his life is like by reading some of the above.  And then by starting a conversation, one where you don't let him get away with, "good, the same, crappy.", one where he really tells you about what is going on with him and you really listen - just listen.

Friday, April 08, 2011

After 9 years

We've lived quite a long time with MS.  The truth though, is that we have not always acknowledged it's presence in our family.  Not everyday.  Not in all the ways it has affected us, changed us, and hurt us.  That is changing.  Quickly and with force Jim has swept away any reluctance to face this disease head on.  To take charge of MS, to no longer let it take charge of him.  This has meant lots of reading, talking, crying, fear, relief, joy (yes, I said that), and reaching out.  We are reaching out to the MS society for help and support.  The hot-line, the counseling, the advice, the ear and shoulder.
And so, we must support those supporting us, to keep that support coming:

We're walking on Saturday, April 16th in San Luis Obispo.  The whole family plus more family.  And maybe you?  Join us if you can.  Donate if you would like to.  We appreciate all your love and support in all the many forms it takes.  Still. After all these years.